Raised
$115,897.29
Progress
Goal
$100,000

Join #MillionsMissing in the US!

#MillionsMissing is a global campaign for health equality for people with myalgic encephalomyelitis (ME), organised by#MEAction. We are protesting around the world for equitable funding for biomedical research, clinical trials, medical education and public awareness. We will take to the streets - and demonstrate from our beds - from May 5th to May 12th.

Myalgic encephalomyelitis is a debilitating, multi-system disease that affects over 1 million men, women and children of all ethnicities, ages, and genders in the US. ME leaves 75% of those affected unable to work and 25% homebound are bedridden.

In the US, the #MillionsMissing campaign is calling for our government to take bold, comprehensive leadership to deliver tangible health outcomes for people with ME. The science is ready. Now is the time for the National Institutes of Health (NIH) to invest the resources and develop a plan to deliver a diagnostic test, clinical trials and treatments for people with ME in the next 5 years.

Last year we presented our demands directly to the NIH Director Francis Collins. (Read our letter to Collins and view our presentation from the meeting.) In April, hundreds of activists are heading for Capitol Hill to build support from Congress for ME. In May, the millions missing from their lives due to ME will show that world that we are here, we are fighting for our lives, and we are not going away.

Join the #MillionsMissing movement to demand justice for people with ME, and create your own fundraiser to power the work of #MEAction. Learn more at millionsmissing.org.