Raised
$115,922.29
Progress
Goal
$100,000

Jaime Seltzer

$950

If you support one thing this year, fund protest

Hello, everyone! My name is Jaime Seltzer, and I am fighting to improve the quality of life for people with myalgic encephalomyelitis (ME) a debilitating, multi-system disease that affects over 1 millionMore...

Special Thanks To

Jaime's MillionsMissing Team (US)
#MillionsMissing San Francisco, CA

Jaime Seltzer $950.00
 

If you support one thing this year, fund protest

Hello, everyone! My name is Jaime Seltzer, and I am fighting to improve the quality of life for people with myalgic encephalomyelitis (ME) a debilitating, multi-system disease that affects over 1 million men, women and children of all ethnicities, ages, and genders in the US. 

 

MY STORY:

My mom contracted ME in the 1990s when it was still disparagingly called ‘yuppie flu’. She was lucky enough to get a diagnosis and treatment skilled enough to save her life.

 

In the 2000s my oldest sister contracted ME. She didn’t tell any of us she’d been diagnosed until I was in the 2010s.

 

Due to decades of stigma, poor research funding, and dismal clinical education, there wasn’t even enough research for any of us to know that susceptibility was genetic.

 

Research in metabolomics, the microbiome, and the immune system is at a tipping point.  We’re just at the brink of connecting the dots.

 

But to do that, the NIH and CDC need to step up and provide funding commensurate with disease burden, so that high-quality research can press on.  Right now, though ME is on average more debilitating than MS and twice as common, it is funded at approximately 1/13 the funding.

 

Studies show that $1 spent on lobbying generates $25 in research funding. Just as it was with the AIDS crisis, protest IS the way forward. 

 

You can do something that will really help people with ME.

Please consider making a donation for my P2P. You CAN do a world of good.

 

Thank you!

About this Campaign

#MillionsMissing is a global campaign for health equality for people with myalgic encephalomyelitis (ME), organised by #MEAction. We protest around the world for increased government funding for research, clinical trials, medical education and public awareness. You can find more information about the campaign at millionsmissing.org.

 

Myalgic encephalomyelitis (also known as "chronic fatigue syndrome") is a chronic, debilitating, multi-system disease that affects over 1 million men, women and children of all ethnicities, ages, and genders in the US. ME leaves 75% of those affected unable to work and 25% homebound are bedridden.


#MEAction is a 501(c)3 non-profit organization and international network of patients fighting for health equality for ME. Donations to this #MillionsMissing fundraiser support our work and are tax-deductible.

Donation Amount:

Your Contact Details

Donation Amount:

Processing donation...
loading